Awful, AWFUL few days.
Four days of a ridiculous numbers of seizures. Today I officially beat the record for ‘most seizures in one day’ since I started recording a month ago. 25 seizures today, and a migraine to boot this evening…I feel absolutely awful but can’t sleep because of the pain 😥
I know every seizure takes it’s toll on my brain and body, and I want to sleep to help it recover but it’s not bloody letting me!!
I have some ski goggles arriving tomorrow which will hopefully help reduce seizures. Nearly all my seizures seem to be triggered by flashing lights, bright lights, the bright sky, changes in lighting etc, so really hoping the goggles will help. I’ll look like a prat, but oh well!!
Also started taking veggie Omega 3 pills, and have ordered some CBD oil in.
Sasha did an amazing seizure alert this morning but I can’t manage to write about it now. God I feel awful…